This is such an exciting time for CAPS! April was Parkinson’s Awareness month and our extraordinary team of volunteer board members was very active in activities and meetings related to increasing awareness and knowledge of the condition.
We freshened up our logo, launched a new website, and started including our newsletter content in our CAPS blog to allow easier access to the valuable information that we offer (which will continue to evolve over the months ahead). This is in response to the survey we conducted in March, which also led us to our current efforts to develop new support group segments focusing on the later stages of PD. We have also scheduled our first in person monthly meeting in over two years on May 19, 2022. See below for more information on this in person luncheon meeting and sign up for our newsletter to stay up to date on future events.
We have been expanding our partnerships in order to offer more education and social engagements such as the luncheon meeting on May 19, co-sponsored with AbbVie. I am also pleased to announce a new relationship with De Oro Devices, the manufacturer of NexStride, an unobtrusive device that helps people with Parkinson's to minimize, overcome, and prevent frustrating and debilitating freezing episodes.
A study at the University of Rochester concluded that individuals diagnosed with PD doubled in the past 25 years and is expected to double again in the next 25 years. The population of Austin is growing so fast that it is expected to double by 2040. If the study’s estimates are correct there will be approximately 50,000 individuals diagnosed with PD in the Austin area by 2040! Yikes! CAPS has been serving the needs of individuals with PD and their care-partners for over 35 years and we are planning for at least another 35. We have only been able to serve for so long based on the kindness and generosity of individuals who care to financially donate or volunteer their time for individuals in need. It is not any different going forward.
Take care and be well.
CAPS is proud to support the Parkinson's foundation and their upcoming Parkinson's Revolution event!
Parkinson’s Revolution is an indoor cycling experience happening virtually and in person across the nation on June 11, 2022. It combines passion, determination and community to generate awareness and advance our mission toward a cure. Welcoming riders of all abilities, Parkinson's Revolution encourages participants to work up a sweat and generate funds to make lives better for people living with PD.
Find more information and register here.
There is a lot we still don’t know about health and Parkinson’s disease (PD). Different forms of medical research help us learn more, and we can only reach breakthroughs in treatment and care if people participate in the studies.
Learn more about the benefits of clinical trials, how they're conducted, and how you can take part.
Human studies are critical to advancing new treatments and cures for people with Parkinson’s disease (PD). Research volunteers are critical partners in scientific progress, and there are many ways to contribute.
Read more on how you can help, whether you have Parkinson's or not.
Women & Men’s Care Partner Group
Meets on the 1st Wednesday of each month at 11:00am
People with Parkinson’s Group
Meets on the 3rd Thursday of each month at 3:00pm