Resources for the Parkinson's Disease Community

Here are a few of the many websites available that provide information of interest to Parkinsonians, families, friends, carepartners and healthcare providers. To make it easier for you, we divided the list into Austin/Central Texas resources, other PD Support Groups and national organizations.

CAPS is building a library of forms and other information that you can download and use. Just click here to learn more.

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CAPS provides information regarding Parkinson's Disease Studies and Projects currently underway. Just click here to learn more.

We also included information for contacting your elected representatives. Please take the time to write, call or email these individuals to ask their support for Parkinson's Disease research.

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**Austin Area Resources**
Bastrop, TX Support Group	The Bastrop PD Support Group meets on the 4th Thursday of each month, from 2:00 - 3:00 PM. Location: Argent Court, 508 Old Austin Hwy, Bastrop (map). For more information, please email Susie Lightfoot Scherr.
Burnet, TX Support Group	The Burnet PD Support Group meets the 2nd Wednesday of each month, from 2:00 - 3:00 PM. Location: Business Offices of Seton Highland Lakes Hospital, 309 Industrial Blvd, Burnet (map). (Please enter through "Patient Finance" door.) For more information, please email Susie Lightfoot Scherr.
Georgetown, TX Support Group	The Georgetown PD Support Group meets the last Thursday of each month from 2:00 - 4:00 PM. Location: Scott&White Clinic, 4945 Williams Drive, Georgetown (map). For additional information, please email Beverly Edwards.
Southwest Austin, TX - Querencia Support Group	The Southwest Austin - Querencia Support Group meets on the fourth Wednesday of each month at 2:30 PM. Location: Querencia Barton Creek, 2500 Barton Creek Boulevard, Austin, Texas 78735 (map). Meetings are held in the Lantana Room on the 2nd floor. For additional information, please email Susie Lightfoot Scherr.
Wimberley, TX Support Group	The Wimberley Area Parkinson's Association (WAPA) support group meets the second Friday, from 11:00 am - 12:00 pm. Location: Chapel in the Hills, 14601 Ranch Road 12 (map). For further details, please email Kathryn Hayes.
Austin Area Young Onset Group	The greater Austin-area Young Onset Parkinson's Group meets regularly at various (fun) locations in the greater Austin area. Please please email A.J. Hernandez for the latest dates, times, venues and events.
Austin, TX Solo with Parkinsons	This support group addresses the needs of Parkinsonians living alone. Solo with Parkinson's meets monthly at various locations. For additional information, please email or call Lydia Blanchard at 512-445-2478. Please note -- volunteers are needed to drive participants to and/or from the meetings.
Parsons House Austin	The Parsons Family and Janelle Parsons generously support the Capital Area Parkinson's Society. They provide office space and a site for Board meetings. Parkinsonians are welcomed as residents of this retirement and assisted-living community.
Family Eldercare	Family Eldercare provides essential services for elders, adults with disabilities and those who care for them. Founded in 1982, this non-profit organization serves Austin and the surrounding community.
Neurology Solutions Consultants	NSC is a movement disorders neurology clinic located in Austin. Dr. Rob Izor is board certified and fellowship trained in movement disorders, Parkinson's Disease, tremors, spasticity and dystonia. NSC provides innovative and comprehensive care for patients and their families, and consultation to Austin area neurologists.
Taste & Smell Disorders Clinic	Over two million Americans have problems with smell or taste and over 250,000 visit a physician each year for this problem. Those with Parkinson's Disease are particularly vulnerable. Dr. Ronald Devere, Director of the Taste & Smell Disorders Clinic is a board certified neurologist, fellow of the American Academy of Neurology and the American Academy of Disability Evaluating Physicians.
Alzheimer's Disease & Memory Disorders Center	In conjunction with his work in taste and smell disorders, Dr. Ronald Devere also has been treating patients with Alzheimer's Disease and other memory disorders. The AD-MD Center is located in Lakeway, TX.
Plummer Movement Disorders Center	Plummer Movement Disorders Center, at Scott & White Hospital, Temple, TX, is a National Parkinson Foundation designated Care Center, with an interdisciplinary team that focuses on care for people with Parkinson's and their care-partners, and on outreach and education to communities throughout central Texas. Contact: 254-742-6065 or 254-724-8374.
St. David's Texas Step	St. David’s Texas Step program is designed both for people who have not been diagnosed but are experiencing difficulty with gait; and for people with known Parkinson’s Disease who have either motor complications, autonomic problems, or a combination of increased rigidity and dementia that has made them more difficult to manage at home. (512-544-5116)
Austin Area Psychological Consultants List	Dealing with Parkinson's Disease can be difficult for everyone it touches. To assist our members, their carepartners and family, CAPS prepared a listing of psychologists in the Austin area that can provide assistance. Click here for the most current list.
Austin Groups for the Elderly	Austin Groups for the Elderly is a non-profit organization empowering carepartners, the elderly and their families through education, advocacy, resources and support. Programs include Elderhaven Adult Day Care Center, Caregiver Resource Center, SeniorNet Computer Learning Institute, and Historic AGE Building Houses Non-profits.
Ride Guide	The Community Action Network publishes the Ride Guide: Senior Transportation Options in the Greater Austin Area. The information is available in chart form. You can also download the Ride Guide in PDF form. ( 266 KB, requires free Adobe Reader.)
Area Agency on Aging of The Capital Area	The Area Agency on Aging of the Capital Area (AAACA), is a non-profit agency whose mission is to promote independence for people sixty years or older and their carepartners. The AAACA is based in Austin, Texas and serves counties of Bastrop, Blanco, Burnet, Caldwell, Fayette, Hays, Lee, Llano, Travis and Williamson.
The Freddy Powers Parkinson's Organization	The Freddy Powers Parkinson's Organization was founded in April 2006 to honor award winning singer/songwriter/producer Freddy Powers, who suffers from Parkinson's Disease. The Foundation benefits Central Texans with Parkinson's Disease and their carepartners.

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PD Support Organizations in Texas

Texas Support Groups	This is a useful link to a page that lists several local community support groups in various Texas areas.
Dallas Area	www.daps.us
Houston Area	www.hapsonline.org
Lubbuck	www.lubbockwtps.org
San Antonio	www.aapsg.org

U.S. Senators and Representatives

US Senators

This link provides a searchable listing of all U.S. Senators along with their mailing address, email address and office phone numbers.

US Representatives

Use this link to locate and contact the U.S. Representative for your district. You can search by zip code to locate your Representative.

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The Alliance for Medical Research	The Alliance for Medical Research provides a non-biased, non-partisan education program and materials about the science of various medical research topics, including but not limited to Regenerative Medicine. View their new video explaining the benefits of stem cell research.
National Parkinson Foundation	The National Parkinson Foundation is the largest organization serving persons affected by Parkinson disease throughout the world. The Foundation supports research for a cure and programs dedicated to improving care and quality of life. NPF provides information, support, and education for persons with Parkinson, their families, and health care professionals.
Texans for Stem Cell Research	TSCR's mission is to educate Texans on the benefits of all forms of stem cell research, to see that such research moves forward ethically and without undue burdens, and to ensure that future stem cell treatments are available to those who need them.
Caring.com	Caring.com is a website dedicated to helping people take care of their aging parents and other loved ones. Its mission is to help these family caregivers by providing trusted information, access to eldercare experts, community support groups, and a directory of local caregiving services.
National Young Onset Center	The National Young Onset Center and website were created especially to address the unique concerns of younger people with PD, their family members, friends, and healthcare providers. It is part of the American Parkison Disease Association, Inc.
Young Onset Parkinson's Association	YOPA serves all young-onset Parkinson's patients, particularly the recently diagnosed, by actively searching for them and providing them with empathy, information, an affiliation with others like themselves, a connection with the young onset community, and a larger voice in advocacy.
Parkinson's Disease Foundation	The Parkinson’s Disease Foundation (PDF) is a national non-profit organization devoted to funding research, providing education and advocating for Parkinson’s. PDF sponsors many trials. Information on those trials can be found at www.pdtrials.org.
Davis Phinney Foundation	Every Victory Counts™ is the Davis Phinney Foundation’s program for living well with Parkinson’s disease. It is intended to provide a single source of accurate information with inspiration to encourage people living with PD to take a proactive approach to their disease from diagnosis through long-term management.
NeedyMeds	NeedyMeds is a 501(3)(c) non-profit, which helps people who cannot afford medicine or healthcare costs find sources for those medications. The information at NeedyMeds is available anonymously and free of charge. Click here to download their brochure. (206KB PDF)
American Parkinson Disease Association	The American Parkinson Disease Association, Inc. was founded in 1961 to ease the burden and find a cure for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient services, education and raising public awareness of the disease.
Muhammad Ali Parkinson Center	The Muhammad Ali Parkinson Center (MAPC) is a National Parkinson Foundation Center of Excellence. MAPC also operates a national Parkinson's Disease Registry, intended to facilitate the development of new therapies and healthcare services.
Parkinson Alliance	The Princeton, NJ-based Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease.
Parkinson's Action Network	Founded in 1991, PAN is the unified education and advocacy voice of the Parkinson’s community—more than one million Americans and their families. PAN increases awareness about Parkinson’s disease and seeks federal support for Parkinson’s research.
The Parkinson's Institute	The Parkinson's Institute is the only organization that combines the resources of a full basic research laboratory with access to a wet lab, stereology facility and tissue bank; a cadre of 30 clinical researchers and epidemiologists; and a patient care clinic with a database of thousands of Parkinson's disease patients.
Michael J. Fox Foundation for Parkinson's Research	The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this lifetime through an aggressively funded research agenda.
Hope for a Cure Foundation	Hope For A Cure Foundation for Parkinson's Research was established to increase awareness and raise funds for Parkinson’s disease. Money raised supports research and funds efforts to improve quality of life for Parkinson’s sufferers. Hope For A Cure Foundation also provides informational booklets and pamphlets
Northwest Parkinson's Foundation	The Northwest Parkinson’s Foundation is a nonprofit organization established to improve quality of life for the Northwest Parkinson's disease community in the Pacific Northwest. In addition to producing educational resources, providing support to patients and carepartners, and advocating on behalf of Parkinson's families in the region, they are a partner in the Kirkland, Washington-based Booth Gardner Parkinson’s Care Center, a regional center of excellence in the treatment of Parkinson's disease.
We Move	WE MOVE is a comprehensive Internet resource for movement disorder information and education. Established in 1991, the organization has been educating and informing patients, professionals, and the public about the latest clinical advances, management, and treatment options for neurologic movement disorders.
PDtrials.org	PDtrials.org lists Parkinson’s disease clinical trials sponsored by the National Institutes of Health and other federal agencies, as well as by private industry and institutions currently taking place in locations across the United States. All of the clinical trials described on this site have received approval from the Food and Drug Administration (FDA) and the Institutional Review Board where the study is being conducted.

Parkinson's Disease Resources